The Get Well Card

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So I wrote this post a while ago and then fell unfortunately quite ill again never making it “back” to work, so it’s a little out of context but wanted to share it anyway.

Woof. This is a doozie but just happened and has me feeling all kinds of ways, and I should write about said feelings yes? That is generally the purpose of blogs right? Right. So let us dive in: the past almost 3 months or so the struggle has been real, pretty incapacitating shit, flaring on all cylinders you know the drill. This fuckery on behalf of my immune system, resulted in me needing to take some considerable time off work, which I hate for a host of reasons but that’s not the title of today’s post so I’m not getting into it. I am new to my school this year, after leaving my previous teaching job due to how my illness was handled, so mucho anxiety surrounding the whole thing.

Today was my first day “back” though I had a few false starts and relapsed which sucked because of the welcome backs, anyway I digress, and I was of course greeted with lots of love from my kiddos who don’t get the whole chronic illness thing they’re just like, “hooray you’re better!” And I’m like, “hooray sure not really but it’s fine yay!” As well as the usual “Good to see you,” or “Welcome back” from my coworkers. However the surprise came in the form of a simple envelope with my name on it containing a “Get Well” card signed by the whole staff.

So at first I was ready to just burst into tears because I think that card with all those names felt like some kind of validation that as someone with a virtually invisible illness you never get. It felt like them saying we see your struggle and we support you, and that was fucking monumental. I still haven’t even read all the nice shit people said because I’ll cry and then flare up and it’ll be a whole mess. My own husband can’t even say nice things about me without me blubbering let alone my professional peers? Fuck.

But for some reason in the back of my mind along with this amazing feeling of support and validation I had a familiar twinge of bitterness. As I’m sitting here looking at this sunshine-y bumble bee and the bright flowers on my card, I read the sunny yellow letters, Get Well Wishes…there it is. That familiar twinge of bitterness did have a reason. It’s those those two words that always seem to find us Get Well. This is one of those things much like the phenomenon I mentioned when discussing my tremor, it’s always well intentioned but it’s also kind of really grinds my gears ya know? I have no idea who bought the card and the extent to which they knew my health situation so this instance didn’t bother me but, even some of my extended family members still say shit like Get Well Soon, and I want to be like bitch do you know what chronic  means?

For so many of us there is no permanent well, or all better or cure and it’s one of those things where at least I’ve found you really have to teach people how you want to be treated. Like hey maybe don’t say “Get Well soon” to a patient with a disease they’ll have for the rest of their life. Not cool bro, not cool. Maybe say “I hope you can feel a little better” or “get some rest.”

The card my coworkers got for me really shows where things are for a lot of people with chronic and invisible illness. It was validating and acknowledged my experience and showed support. However things still aren’t quite there yet in terms of knowing what it means to have these illnesses. When I say autoimmune disease in the break room people are like, “wait…what?” and every time I have those welcome back hugs from my kiddos and chats with coworkers and then relapse and have to extend my leave, I know people don’t totally get it. But nonetheless my sunshiney bumble bee card is proudly on the fridge because semantics aside I am truly grateful for the intention and show of support from my school. Thinking of my team and the faces of my kiddos keeps me going, here’s to hoping I “Get well soon.”

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“Coming Out”

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This is something I’ve grappled with ever since my chronic illness became this thing that really started screwing up my for lack of a better word “normal” life. Whenever I find myself in a new situation or predicament, especially professionally, at some point it always happens that I have to come out as chronically ill (borrowing the phrase from lgbtqa+ hope no one is mad). I don’t just get to be Alex that frizzy haired over caffeinated ESL teacher with all the clogs. If I need more than 3 consecutive sick days I have to disclose this deeply personal aspect of my identity to complete strangers. I am chronically ill, I am living with a disability, and yes I know I don’t look like it.

Every new doc, new job, new friend, new whatever I have to rehash the details. Sure I have my medical history monologue perfected at this point for new docs, but that’s no where near the feeling I’m talking about. It’s almost a feeling of panic like I’ve been caught trying to pretend everything is fine and dandy: that I don’t have this huge secret. I worry and worry that things are going to flare up or something is going to get worse or I’ll have a bad reaction at work or out with new friends . That I’ll get caught and have to confess that I’m oh yeah I actually have multiple somewhat rare and invisible illnesses. It’s casual.

As much as I love to be so candid about some of my experience with chronic illness for my own entertainment, the reality of the situation is that, Yes, I am dealing with some shit and it affects every aspect of my life and it’s really fucking difficult and emotional and all the other things. It’s easy enough to tell your boss you need the afternoon for a doctors appointment, but how do you go about even explaining that you need to do a wash out of all your meds for invasive testing over the course of two weeks and you don’t have a fucking clue how that’s gonna go down. “People” don’t really take two weeks off for doctors appointments, but as anyone in the rare disease gang can tell you sometimes between prep and the falllout that’s just how long it’s going to take to return to again that word “normal.”

So here I am sharing my 10yr+ medical history with yet another boss because shit just can’t go smoothly can it? I have to go into the intricacies of my diagnoses, what an auto immune disease is, the fact that MCAS is quite literally unpredictable, that no I’m not making any of this up, and the fact I am barely holding my shit together. Lest we not forget folks: I still don’t look sick…lolz.

I think of this process as a “coming out” of sorts because you clue people in to having a chronic illness, an invisible disability some tend to re-classify you. I mean throw the word disability around in the work-place and everyone freaks the fuck out and needs to call HR, before talking to you ever. And with coworkers, the greetings now are always a “how are you feeling?”…or subtle back up plans made without you to be in place “just in case” It creates this cloud of “sick” stigma around so many things that’s often beyond unnecessary, all stemming from shit you probably didn’t even want to share in the first place.

It’s tricky wavering between these two poles of full disclosure this is what life is like being chronically ill, or maintaining the right to keep private what for many is a deeply personal struggle. Some days I want to say “fuck this, guess what I take 28+ meds a day, have had more docs than boyfriends, and don’t have time for your shit,” whereas I have other days when I want to throw my laptop at a cabinet of medical records and crawl under the covers forever because I have to prove the legitimacy of my disability to a bunch of HR assholes* and just scream, “you don’t know my life!”

So….yeah it’s a balance I guess. I’m definitely working on it…that and the shouting/cursing.

*No offense to anyone in Human Resources you are the real mvps most of the time

Special Skills You Can’t List on Your Resumé Pt. 1

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Sorry in advance I didn’t have the spoons to find perfect hilarious pics/memes so this post is naked.

The whole illness thing is often an inconveniencing major bummer, but I like to look on the bright (or at the very least tragically humorous) side of things and ya know it’s really not all doom and gloom. In that vein I thought I’d share some of the special skills that my 10+ years of being the illest have afforded me. They would likely be frowned upon on my resume, though I low key wish I could put them on there because some of them are clutch.

1) Public Restroom Savant: Ok so you’re probably like where is this bitch going with this one, but bear with me here. This was something my brother actually realized before I did, but given my frequent bouts of digestive distress, I know the location of the restrooms in literally every store, bar, cafe, bank airport, supermarket, theme park and residence I’ve ever been. Domestically and abroad. I also know within certain locations, say the Target near my mom’s house for example, where you can find a secluded private restroom apart from the others if you’re “in a bad way.” This vast knowledge has also allowed me in new locations to extrapolate my existing data (flexing that one statistics class I took) and apply it to the new locale. Someone always has to go, it’s just nature, and you know who is incredibly valuable? The person who knows where the fuck the bathroom is. I rest my case.

2) Amateur Mobile Pharmacist: At any given time in my various bags, jacket pockets, blankets, and wallet you can find pills. Disclaimer they are all medications that have been prescribed to me etc. In addition to the Rx drugs, I like to have a nice collection of backup/supplemental over the counter varieties because you just never know. The bag I take to and from work is filled with so many things my coworkers once tried to guess weird shit trying to stump me as a happy hour game. I won. Anyway back to the pills, so quickly knowledge of my collection of pharmaceuticals spreads, I mean the demand for ibuprofen and excedrin at a middle school? Crazy, always have it in stock. Need vitamin C? Got it. Benadryl? Of Course. Hydrocortisone cream? Most def. At the end of the day it’s really a public service.

3) Yes, You Bet your Ass I’ll Hold: Now this one which is essentially a superhuman degree of patience and tolerance for administrative bullshit is the closest to actually being a real marketable skill and does come in handy when working with my gremlins students. This patience comes from years and years of training, building up my endurance, and believing that I in fact was the next caller and that the doctor would be right with me. Well jokes on them because look at me now. You think I won’t wait on hold for 45 minutes to make you talk to me Mr. Electric Company Man, oh because I will. You think I won’t fill out this 4 page claim to get you to cover my carpal tunnel wrist brace? That $18 is two months of Hulu brah. I have found that the secret to getting the service you want is being willing to wait a fucking long ass time on the phone or fill out bullshit paperwork, something millennials definitely don’t do. Life hack people. They’re (the man, big pharma, the place you’re tryna get reservations) counting on the fact you’ll give up. And with the years and years of being on hold, who knew I was also becoming a better educator because having way more patience than you ever thought possible is coincidentally the key to that too.

I don’t know how proud of these skills I am (ie #1) but living life ill definitely makes things more interesting. I’m certainly not running marathons, and I’ve forgotten my own birthday at the pharmacy but if you need an ibuprofen, don’t know where the toilet is at ikea or want someone to badger the insurance claims department for weeks on end: I’m your girl.

What hidden talents have grown from your time putting up with the endless bullshit of chronic illness? Are your special skills equally inappropriate? Do tell.

Lying to my Mother and Other Loved Ones

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In honor of this Mother’s Day I thought I’d give a little shoutout to the woman that has been with me on this journey since day one, paid for a lot of it, and may be even more emotionally taxed by it all than me, my momma. Although I have an incredibly close relationship with my mother, non traditional family structure, etc. I find myself lying to her the most about how I am at any given point time with regard to my health. And she definitely knows it.

Ross Geller the polarizing paleontologist from “Friends”, who is def NOT fine.

Much like in “The one where Ross was fine” when you have loved ones so invested in how you are you want to be fine to lift some of that emotional weight we know they carry. Even though, like Ross, a lot of the time we’re definitely not fine. Now this kind of lie or “pretend fine” is totally different from when some rando asks how you are and you know they couldn’t give two shits so you just say, “oh yeah I’m fine” because they don’t want to know. This is different it’s a loving lie.

I think when you’re in this kind of dumpster fire of a health situation for a while one can err on the side of glossing over the gory details. I know I find myself doing it all the time even at the doctor, like “How are you?” I reply, “Good thanks,” what the fuck? No! Why did I say that? I’m not good. Even more so with our family and loved ones it’s like you don’t want to be a perpetual bummer to create more worry and concern. So it’s “yeah, I’m ok” or “oh I’m just having a little flare” or “it’s nothing just a little inflammation” all of those most likely translating to something a hell of a lot shittier.

It’s all these little subconscious lies and understatements that I find myself saying, because I worry about other people’s worry. Which brings me back to my mom. She has started to really catch on to this habit and our phone calls are often comical interrogations of if I’m actually fine or Ross fine (we really love Friends if you hadn’t noticed), questions about incriminating instagram likes with regard to my insomnia, to reminders about inflammation causing non AIP diet friendly foods seen in my snapchats. I love her tenacious and unwavering commitment to my care and am so thankful to have someone with google alerts for every one of my diagnoses. Have had to explain the whole Jewish mom thing to my primary care doc when I come in with a page of prewritten notes and follow up questions.

Yet, behind all the practical solutions, long phone calls, always answering a text with the perfect gif when I’m bumming hard, I know there is a huge emotional weight, and this applies to a few people closest to me but she’s the OG. So I find myself wanting to say, “oh yes I definitely got 8hrs of sleep last night” when in reality it was, “my back was in spasm so I laid on my kitchen floor and got about 2.5hr of non consecutive sleep.” Because lezbehonest what mom wants to hear that? NOBODY. But being the OG she outsmarts me every time and finds out one way or another. I’m thinking she has a mole on the inside in the form of my husband/home health aide.

Just one example of the multitudes of gifs my mother has sent me, who doesn’t love a penguin with an IV when I was also at the hospital with an IV?

I guess as much as I and perhaps other chronically ill folks try to protect those around us from the burden that is sharing in our journey and our daily battles, you also have to do right by yourself and be honest about your experience. As much fun as lying is, I don’t know that we’re really fooling anyone. So shoutouts to all the moms (and other loved ones) who care for their chronically ill bebes, you’re the real MVP.

No sense in crying over spilled pills

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Had one of those moments the other day where something that to a randomly sampled audience would probably be fairly insignificant happened and I was just ready to lose it. Like the worst has happened, there’s no turning back everything is ruined, the universe is out to get me kind of reaction. Sometimes when so much shit is just miles beyond your control and all your energy goes not pulling at that thread, one can overreact, eh rather let’s say manifest multiple emotions in a less significant event. Which is precisely what happened to me the other day.

At this point I hope I’ve created some dramatic build up because this was some seriously disastrous shit and deserves some suspense you guys. So I was sorting my pills because it was pill day (we’ll get into that another time) and I opened one of the compartments Tuesday PM to be specific and it just snapped clean off. It was in that moment I too snapped. First this was a NEW pill organizer, so why the fuck is it even breaking and why is CVS producing an inferior product to the identical one I bought 3 years ago that is still intact? Second, it is SO HARD to find the good super XXL pill organizers I was so excited when I found a second one to have AM/PM that actually held all my shit and now I have to begin this process over? Oy motherfucking Vey. Third, sure I could fix it but then it won’t perfectly coordinate with the AM one and the whole system is aesthetically ruined, something that is probably more important to me than it should be.

The gang before tragedy struck, didn’t know what was coming for him RIP

So, here I am distraught over this pill organizing catastrophe, holding this dumbass little piece of plastic with the T for Tuesday, not sure my plan of attack, and my husband says, “It’ll be ok we can go to both CVS’s and see if they have another one tomorrow.” And I’m thinking, one, it’s good he understands that it has to be the exact same or I’ll have matching issues, that’s love, and two, that it’s really not about the pill organizer ya know? I mean yes I am pissed at CVS but we have a rocky relationship anyway (more tea on that later). I’m pissed that I have 2 XXL pill organizers filled to the brim, a cute lil XL for midday tied to me at all times. I’m pissed about loads of other things it’s just a lot easier to get mad at a little piece of plastic that has wronged you than your own body. Woah deep shit.

Alas, considering purchasing a ton of pill organizers and other drug accessories and writing reviews based of different criteria, size, durability, ease of opening, etc. Ya girl does love to shop…

Flakier than a Croissant

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First of all no I’m not talking about my dry skin, so don’t worry…yet. The flakiness to which I’m referring has to do with all the cancelled plans, no shows, skipped appointments, and rain checks that often accompany the lifestyle of the chronically ill. Given there have been many times that getting to the fridge is an all day outing, I’m all too familiar with the cycle of anxiety, relief, guilt and isolation that comes from cancelled plans. All of this leaves me feeling like that lil croissant: the flake, the one that always bails, that people can’t count on. And although flakiness is a beloved quality in French patisserie, not so much in people ya know?

I do feel incredibly lucky to have the absolute best people surrounding me through the absolute shitshow that is life in your mid-late 20s. I am also very grateful to still be able to work, for the most part. This lends my everyday life a tiny bit of normalcy that lets me pretend sometimes that I am not in fact quite ill. It’s those times I’m reminded and have to bail, stay home, go to the doc, the ER, or take time off work, that *poof* all that pretend normalcy just is gone.

Anyone who has interacted with me longer than a month knows any plans we make always have that little asterisk referring to the fine print, that states the plan is 100% dependent on how I feel in the moment. On one hand it’s wonderful to have such understanding friends but on the other having that caveat and their flexibility never seems change how I feel about any of it. I still have the same cycle of anxiety, relief, guilt and isolation.

It always is going to suck to have to send that text saying, “sorry brunch is a no go today, having a flare.” The anxiety that leads up to it, the mental math of energy allowances, dreading cancelling yet again. Don’t even get me started about work that’s a whole other animal. But, as soon as you hit send you can melt back into bed, turn up the heating pad and it is a huge relief albeit bittersweet.

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8 days! I had 8 glorious days of no appointments, treatments, doctors or hospitals. It was a much needed break as I’m still stuck in this flare! But today I’m back to the grind because I’ll be in and out of Mass General for the next few days. I just hope I’ll be able to make it to every appointment. It can be so frustrating sometimes when my body fails on me but I am blessed that I have family and friends to transport me to and from MGH. • • So today I’ll meet with my new endocrinologist and my GI team, in preparation for my upcoming total pancreatectomy with islet autotransplantation and partial gastrectomy. I’m excited because I have so many questions I need to ask, tbh they’ve been driving me crazy! • Goodluck to all the #chronicillnesswarrior s out there fighting endless battles. You are not alone. 💜. • #professionalpatients #asecretspoonielife #livingwithchronicillnesses #chronicillness #chronicpancreatitis #acutepancreatitis #gastroparesis #chronicpain #exocrinepancreaticinsufficiency #epi #acf #aip #mecfs #autoimmunediseaseawareness #gastrodiseaseawareness #pancreaticdiseaseawareness #spoonie #spoonies #spooniesupport #spooniearmy #spoonieproblems #spoonielife #codepurple #tpiat #butyoudontlooksick

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No matter how understanding those in our lives are, how many times I hear “don’t worry about it,” I’m still going to worry about it. Rescheduling Christmas morning because you’re having a flare is a huge bummer, no matter how you slice it. Those moments where you have o politely excuse yourself and find a dark room to sit in because your body is freaking the fuck out about nothing is isolating. It takes its toll.

Sure I love cancelling plans as much as the next millennial. Especially when I’d rather be in my jammies watching Netflix, but this? This is a whole different beast.

Did you know you’re shaking? Essential Tremor 101

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Throughout the life of this blog you guys will probably hear about my tremor a fair amount because quite frankly it has been the source of some of the most hilarious and most dumbfounding moments of my life thus far. So today is just the tip of the iceberg my internet friends. However, I feel I have to start the tremor saga the way it tends to start in life with one of the following:

A) “Oh my god, are you ok? your hands are shaking!”

B) “Did you know you’re like shaking?”

So I’m going to use one of my favorite psychoanalytical phrases, and lets unpack those statements below:

Response A: Ok so first things first, this person is most likely coming at you with concern and general regard for your well-being. However their alarm is 9 times out of 10 totally unnecessary and ends up kind of being a pain in the ass.

Response B: My personal favorite way to recognize a tremor, to which I want to scream, NO FUCKING SHIT DUMBASS, but like I don’t. Deep down I say to myself, they know not what they do, and hope that they too are coming from a place of concern. But again as with before it’s unnecessary and more of a pain for me while I spill hot liquids on myself because I refuse to give up on coffee mugs.

So when I say these responses become a pain in the ass it’s often because people assume that one cannot be both “ok” and have a tremor. This is often rejected or met with more probing questions, which of course makes you anxious and oh wait! Makes you tremor worse and I’m like “ENOUGH Barbara! I’m not probing you about your medical history so back the fuck up!”

The second reason this bugs me is I hate having to make other people feel comfortable about my disability, or my chronic illness. And I am incredibly lucky to be able to fly under the radar most of the time. But it’s bigger than tremors it’s any illness. It’s the notion of oh sorry me coping with my illness bums you out, let me take time and energy to normalize this for you. Ain’t nobody got time for that! I’m perfectly happy twitching up a storm at yoga, and I am not going to worry if watching me deal with my tremor will harsh your mellow.

In short, YES FOR FUCKS SAKE I KNOW I’M SHAKING AND NO NOTHING’S WRONG.

“I feel like I’m in a Relationship with your answering machine.”

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This remark by none other than the polarizing Ross Geller of NBC’s Friends, is not only so 90’s, but it also perfectly describes the relationship I, and basically anyone trying to get an appointment in specialized medicine, probably have with at least one of our physicians’ offices. When I think about the collective amount of time I’ve spent on hold, at the mercy of the scheduling people, or the billing people, or the insurance people it takes me to a bad place. Like a fuck this I’m gonna eat a pack of Oreos with ice cream, and get hives, then pick at the hives until I look like a leper, kind of place.

My most recent one sided relationship happens to be with my neurologist who needs to see me before refilling meds, funny part is her next appointment isn’t for…wait for it…drum roll…almost 5 months! So as one might imagine this is a teeeeny bit problematic as without said meds my brain and central nervous system misbehave quite a bit. After a brief hold of 55 mins (under 60 is brief) I explained the time sensitive nature of the situation and was advised to call back daily to see if there are any cancellations. Cool cool cool cool cool. So just like Ross (in yet another relationship blunder) I again find myself asking: What do I do now?

Before I continue I feel like it’s important I recognize two things: the first is that I know healthcare administrative staff are doing their best, it’s not their fault as so many are working for systems that aren’t patient centered. The second is I also recognize I’m not the only patient, there are so many others suffering this same bullshit which only makes me more upset when I’m on hold for an hour because that means someone else is on hold for two hours. It’s bullshit man.

Being chronically ill starts to become a full time job when the only solution you’re offered is to spend an hour on hold every day to maybe be able to snag a cancellation. Lest we forget we’re doing this on top of already feeling like garbage, managing our meds, and all the other regular adult human shit like paying rent and feeding yourself. The “solution” I was offered doesn’t feel very solution-y to me, but at the moment it’s all we got. Unfortunately I can’t take a break from my neurologist a la Ross & Rachel. I can at the very least rewatch Friends while I’m on hold and thank my lucky stars I have unlimited calling on my cellular plan.

Why Weezy?

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At this point some of you may have become curious or even confused with regards to the name of my blog, asking yourself:

  • WTF does the illest even mean?
  • Wait…isn’t that like a rap lyric?

    • Hopefully today’s post clears up some of your curiosities, and you can understand the method behind the madness.

    “[Bitch] I’m ill, not sick”, was first uttered by Lil Wayne or Weezy, in the song A Milli, on my personal favorite album Tha Carter III. (Actually it was motherfucker, but I’m trying to tone it down just a touch). This line for whatever reason has always resonated with me.
    When I think of sick, I think of weak, helpless, and needy. I also think of acute problems, tissues, cold medicine, “get well” balloons. None of those things match what it really means to be chronically ill. For a person with a chronic illness a “get well soon” can feel like a slap in the face or punch in gut. It’s at that moment I want to say “Bitch, I’m ill not sick.”
    Everyone finds wisdom in different pockets of their lives, and for me Lil Wayne really did say it best, being chronically ill is so more than being sick. So I’m just out here trying to be the illest, to thrive where I can. It almost feels like one of those reclaiming the word used against you kinda things. And whatever your views on Lil Wayne and Young Money as a whole may be, it sure as hell is a nice change of pace from the royal bummer that is being sick.

    Find my titular muse here.

    Russian Roulette: Mast Cell Edition

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    So if you’ve read my saga of a full personal bio you know this, if not SPOILER ALERT, but Mast Cell Activation Syndrome/Mastocytosis are among my principal diagnosis and play a fairly important role in keeping me nice and ill. A huge part of managing this disease is knowing and avoiding your triggers, which makes sense as your mast cells are already doing crazy ass shit on their own, then you throw other histamines in there and it’s a clusterfuck. Very technical language I know, I’m basically a doctor.

    img_1354-1
    SOS from an Uber, perfumes are one of my biggest triggers. Twas just about to barf just moments after this snap.

    The fun part is that virtually anything can be a trigger, environmental changes, food, stress, you name it, we react to it. One might think however that once a trigger was discovered, say dairy for example, you could be like adios queso! Then todo bien, but one would be wrong. The thing that makes MCAS such a sneaky bitch is you may react to something you’ve historically never reacted to before, and vice versa. If I had a dollar for all the shit I’ve had to throw away because it spontaneously started to make me itchy after days or even months of being hunky dory…I could probably quit my second job.

    Alas, this is the essence of Russian Roulette: Mast Cell Edition. Never know if that barrel is empty or filled with hives, tachycardia, and oh so much more. It does however lend hope to the thought one day I may be able to eat Flamin Hot Cheetos again without getting hives all over my body. Silver linings ya know?

    Also quick footnote on #triggered, in the photo it is quite literal in a sense not referring to its definition in a mental health capacity, if you use the term in jest give this a read. Give respect, get respect.